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Choices

Last weekend I was listening to a podcast called Dot Matrix by Junior High School friends Sean and Justin (Facebook and website), and they recited a wonderful poem by Nikki Giovanni called Choices:

CHOICES

if i can’t do
what i want to do
then my job is to not
do what i don’t want
to do

it’s not the same thing
but it’s the best i can
do

if i can’t have
what i want . . . then
my job is to want
what i’ve got
and be satisfied
that at least there
is something more to want

since i can’t go
where i need
to go . . . then i must . . . go
where the signs point
through always understanding
parallel movement
isn’t lateral

when i can’t express
what i really feel
i practice feeling
what i can express
and none of it is equal
i know
but that’s why mankind
alone among the animals
learns to cry

This poem really spoke to me, at a time when I see the choices of others, or their inability to see the choices that are available. I also find that many people of my age range focus on the “what if’s”. I used to be a culprit of this, and I think it unfortunately and fortunately took cancer to open my eyes. I really don’t know what’s going to happen in the future. No one does. So, focusing on the now (thank you Eckhart Tolle), and doing what I feel is necessary helps me to focus on the big picture.

Whenever I think of the big picture I’m always brought back to the Owyhee River during the filming of Wrong Way to Hope. Mikey Lang, the producer, spoke about looking at the small fraction of our lives that we may be in crisis, and to try to focus on the positive. I know, easier said than done, but it really gave me perspective. Whenever I feel like nothing is going right, and I just want it all to crash down on me, I remember that in the big scheme of things, not only does He only give me what I can handle, but that the experience I’m having is so miniscule. I was in treatment for only three months.

An exercise I did through “The Vice-Busting Diet Journal” had me write down how many days I’d already been alive, when I thought I would live till, and how many days I thought I had left. That got me thinking.

  • So far I’ve been alive 409 months, so being treated for cancer only took  0.7% of my life.
  • I’ve been recovering for 4.5 years, which equals 54 months and only 13% of my life thus far.

Now, if I went as far to say that I think I might live until I’m 83, that gives me 588 months left. If I recalculated all of the above based on the fact that I would live a total of 997 months, that 54 months of suffering is nothing. It’s absolute peanuts. It’s 5.4% of my life.

Interesting perspective isn’t it? I talked to some people at work about this, and detailed about how many days I thought I had left – they thought it to be quite morbid. I, on the other hand, am a realist. Amy Spencer says it well in her book  “Meeting Your Half-Orange – An utterly upbeat guide to using dating optimism to find your perfect match.”

The dating world, like life, is made up of optimists and pessimists. Where do you fit in? Are you a glass half-full, who can see the positive side of being stuck with a boring date … fixing a flat tire in the rain? Or are you a glass half-empty, who can meet a handsome, well-adjusted guy who thinks you’re cute … and decide there must be something wrong with him? Maybe, after years of being disappointed in dating, you’ve become a little bit of both – what you’d consider a “realist.”

I don’t think there’s anything wrong with choosing to have a realistic perspective of my future. In fact, I think it allows me to get out there and experience life instead of sitting around at home feeling sorry for myself (not that I do this all the time…though ruminating can be very eye-opening and should be done at times for reflection).

The pessimist complains about the wind; the optimist expects it to change; the realist adjusts the sails. William Arthur Ward

That’s exactly it. I can adjust. I look at how much life I have left and want to live it to the fullest, but sometimes a big black cloud follows us around. For me it was the diagnosis of cancer.

My most recent article on Multimed’s Current Oncology Cancer Knowledge Network, discusses fear and uncertainty, and really about the choices we have. It speaks about my account of hearing the cancer diagnosis, and how those words rocked my world upside down. I didn’t feel like I had a choice. Doctor’s wanted me to begin therapy as soon as possible due to the cancer being so aggressive.

But it’s only in retrospect that I realize I did have a choice. I had a choice on how to react to that news, and I didn’t react well. I became very depressed, as I can imagine many do with this kind of news, and though I smile in these photos, the fear is underlying. Moving away from this has taken years of practice and a community with hearts big enough to handle it all.

As my focus for this year has been love and learning to love realistically, I have to share several books with you that have recently come to my attention and aide. Thanks to a dear friend Jared who introduced me to The Five Love Languages – Singles Edition by Gary Chapman, I have begun to learn about choices to love

The choice to love is the choice to take initiative. It is the choice to do or say something for the other person’s benefit, something that would help make them a better person, something that would enrich their lives or make life more meaningful for them.

If you’re interested in learning more, take this quick test:

Of the five love languages, I think my primary one is words of affirmation. I need to hear that I’m doing great, that I’m loved and cared for. I find it interesting that for some people it’s so difficult. Dr. Chapman states that we need to learn to speak all five languages in order to help make others feel loved.

I actually talked to my dad about this the other day. We’ve had a tense relationship over the years, but we always have really good, deep talks. Unfortunately sometimes they’re focused on him, but, well, if I can share some of my wisdom to help him get through, then I guess I’m doing something worthy. When someone says that they don’t feel loved, then we need to learn how to make them feel that they are. But, when we do all that we can, and learn what it is to make that person feel loved, and they still don’t, what do we do?

Would you change?

I feel that living life openly and genuinely is paramount to living life to the fullest, and that we’ll attract the person who will know how to love us the way we need to be loved. But in many ways, this is not how I’m living my life. Waiting and hoping goes against my values of no regrets and lots of passion. My good friend Marlene writes this perfectly in her blog Changing Times – An Open Letter.

Be vulnerable, don’t settle. Hmm, am I really listening to my own words, or is it all about learning to love realistically? Another book I came across by Lori Gottlieb ponders these questions “Marry Him – The Case for Settling for Mr. Good Enough.” I’ve been thankful to have these books to reference and learn, as I don’t feel that I’ve had great examples of healthy relationships around me. Though I’m still torn.

A person doesn’t take care of the past in one fell swoop. Making peace with oneself comes in stages, and very often when we least expect it. But we need to do it – even if it means going back and looking the devil in the eye. We need to know we are no longer under the influence of past experiences, especially negative ones.

Time slowly but surely removes the sharp, annoying stones that have been in our shoes for years. We know we still have miles to go when something still fills us with anger. But when we can look with curiosity and disinterest upon a bad experience from the past, we know we have turned a corner. This is a spiritual turning point. Celebrate it and give thanks to the Spirit who makes it possible.

Joyce Sequichie Hifler is a new favourite author of mine. She writes daily meditations in “A Cherokee Feast of Days – Volume III” for July 24. I saw this a few days ago and they are wise words. I know in many ways that I’ve come very far, but in others, it’s just another layer of the onion being peeled off. Just when you think an issue is dealt with, life throws it at you another way and it’s there to deal with all over again.

Learning all over again can be tiresome, but it’s helpful. And then there’s sometimes we can use the teachings of others. Blogs are great for this. I came across a new one today that lists all the cancer related blogs out there. I asked to be put on his list, and he posted one of my entries! Checkout Being Cancer – thanks Dennis.

Oh, one more thing. I am on the eve of my third year as a peer supporter for Young Adult Cancer Canada’s Retreat Yourself West. As always, I’m anxiously anticipating meeting 24 young adult cancer survivors. It’s always exciting to spend time with people who’ve been through or are going through cancer. I likened the experience to how the Grinch’s heart “grew two-sizes that day.” I’m nowhere near being a Grinch, but I loved the concept of thinking that my heart can’t grow anymore, and then I come away from a weekend like this and I’m forever changed.

Finishing up with the Retreat this coming Monday means that YACC will be in full planning mode for the Survivor Conference being held in Ottawa this year from November 3 – 7. Applications are open, so please feel free to send them in. Last year was the only year I’ve missed and I hope to attend this one as well.

Can’t wait to share my experiences from Retreat in my next post. Love to you all!

I was organizing my posts and came across one that wasn’t published from over a year ago, so, here it is. I must have not published it for a reason…and now, strangely enough, it links perfectly to the post I wrote today.

After seeing the video, I’m still questioning intentions:  Instead of a one night stand, he wants someone he can spend the rest of his life with? When I first heard the song, I thought it was a ‘one night stand’. I get the idea of that, and don’t feel the reason for it, though somewhat understand it. It’s quite a disconnection of the human mind and body. Purely lust and seduction.

Over the years, I’ve had the time to learn about all the ways that love shows itself; whether it be completely superficial, lust oriented, comfort-based, or fear-based.

I don’t talk about love a lot. In fact, I don’t know many people who do. It’s not generally a topic of conversation. It’s unfortunate I think, because it’s the one thing we all have in common, yet the word itself is used so promiscuously. Maybe promiscuous isn’t the right word….maybe “genuinely” would work better. People don’t understand the word, and therefore they don’t use it properly. There are also so many stages of love:  puppy love, young love, friend love, family love – you get the point.

I wrote a poem a few years ago about love:

Love

The colour is red,
or pink,
or magenta

Like blood, and roses

It takes like life: it’s sweet, but sour at times.

It looks like children laughing,
skipping around a park full of grass,
daffodils,
and tulips.
It’s an older couple holding each other
hand in hand as they struggle
to walk down the street together….
but who know that each step
is all they’ve ever taken with each other.
It’s the gentle hues of a sunset each day…..or at the end of a life…..

A feeling of warm arms wrapped tight around me,
a sweet kiss on the cheek,
a phone call just to say “hello”,
or of the soft touch of a pay or hand.

Dancing in the dark.
The care I have for all life.
It sounds like heaven. Like angels singing, but sometimes screaming to be heard and understood.
Bells.
The softness
and sometimes strength
of wind that flows through leaves of a tree.

It smells like cookies,
hot chocolate,
a bouquet of flowers.
Or from wine.
It’s popcorn feet,
baby powder,
musky perfume,
or Nag Champa incense.

It just is….

Love

Hopefully this explains it.

I just watched this amazing video by Brene Brown on Ted talks and I’m so fortunate to know how vulnerable I’ve been, and how this tenderness has connected me to so many wonderful people in my life. I recommend you watch it if you have some time to listen to it in the background. I did so while I was writing this post as I found it resonated with me so deeply.

I know that love and tenderness have been big topics for me this year, whether it’s been regarding a relationship I’m in which I am personally struggling with due to my past, or what I have felt is an imperative need in my life, or how much I allow myself to be open with others considering the hurt and pain I’ve encountered in dealing with cancer patients.

It’s interesting how much our past experiences denote our responses to current situations.

With regards to vulnerability, the breadth of relationships I have experienced with cancer patients and the wisdom gleaned have allowed me to really open up my heart, though it has been difficult to lose so many from this dreadful disease.

In fact, I must pay tribute to all those lost. This past week we have lost Caio, a 23 year old Osteo-Sarcoma cancer victim. I hate to say the word, but it’s really true. I know he lived with his cancer because of all the support he had, but I don’t think it’s right to live with a disease. I think it’s so unfair to cause so much pain to an angel, as he truly was one. He met everyone with such honour and appreciation of being, that it was impossible to not meet him with love. The memorial service that was held this past Friday was completely full. There was barely room for people to stand. His partner loved him dearly, and really showed this at the service. It was so touching. Several people shared their experiences, songs, poems and flowers, which allowed such a breadth of ceremony.

I’ve had a tough time dealing with his passing. Survivor guilt was never something I thought was possible, until I passed my one year cancer free mark. A survivor mentioned it to me as I’d never heard of it before. It’s a strange concept really; as happy as I am to be here, I’m so angry for those that lose their fight to this horrible disease.

There have honestly been too many to count during my journey post-cancer. I believe there is a post where I was detailing who and when people were leaving this dimension for another hopefully pain-free and peaceful one. I actually feel somewhat disgusted that I was chronicling people I’d met that I’d no longer be able to have relationships with.

I can’t be angry at myself for doing this though, it’s a human response to put things into context and that was my purpose at that time. It is no longer.

On a different topic of love, I’ve been fortunate enough to be asked back for a third time as a peer counsellor to Young Adult Cancer Canada’s Retreat Yourself West. At this retreat, I’m able to share my journey of cancer with others, and hope to reach out to those affected in order to help ease the stress and provide guidance.  Through meeting these people at retreat, as well as survivor conferences and through YACN, I have learned not only humility, but the ability to be vulnerable, which has allowed my heart to overflow with love and tenderness for all.

Tenderness

We had our first conference call the day after the fourth anniversary of my 30th birthday, and some of the words that were used to explain our involvement as peer supporters/facilitators were:  the ability to engage others emotionally by being open and authentic, therefore allowing others permission to do the same. This was summed up by each of the people on the call. I thought it was perfectly put.

Further to that, I think I have already mentioned that I am now writing for a website called the Cancer Knowledge Network through their Patient Connect portion. I have a new post coming up next week, so please be on the lookout!

After finally getting a chance to watch the sacred wedding of Will and Kate a week ago, I heard Lord Bishop of London, Richard Chartres speak about marriage and spiritual growth. He put it most beautifully:

Be who god meant you to be, and you will set the world on fire, so said St. Catherine of Sienna whose festival day it was April 29, 2011 the day William and Katherine wed.

“Marriage is intended to be a way in which man and woman help each other to become what god meant each one to be; their deepest and their truest selves.

Husband and wife are to give themselves to each other. Spiritual life grows as love finds it’s center beyond ourselves. Faithful and committed relationships offer a door into the mystery of spiritual life in which we discover this:

The more we give of self, the richer we become in so. The more we go beyond ourselves in love, the more we become our true selves, and our spiritual beauty is more fully revealed. In marriage, we are seeking to bring one another into fuller life.”

I was really happy to hear this, and realized how unlikely anything like this would have been said so many years ago in the Royal courts. It goes to show how modernized royalty has become and it’s nice to see.

There have been 16 royal services done at Westminster Abbey, the first one done in year 1100…how incredible!

Anyways, I think my real focus for this year is on love. Last week, I heard a quote that got my attention: Loving makes us real. I can’t recall which movie it was, as I had spent most of my time convalescing a week and a bit ago from the flu that wrapped it’s gnarly claws around me.

I’ve realized that it’s been a theme for me for some time now, but I know it at much more of a complex way now that I’m fortunate for my experiences. Love is difficult to explain, but to me it encompasses loyalty, trust, compassion, experience, knowledge and a warm feeling in your chest. I know this doesn’t do the feeling any justice, but it’s a brief explanation.

One song that sticks in my mind when it comes to love is “Rolling in the Deep” by Adele.  Some of the lyrics are:

There’s a fire starting in my heart,
Reaching a fever pitch and it’s bring me out the dark,

The scars of your love remind me of us,
They keep me thinking that we almost had it all,
The scars of your love, they leave me breathless,
I can’t help feeling,We could have had it all,
(You’re gonna wish you, never had met me),
Rolling in the deep,
(Tears are gonna fall, rolling in the deep),
You had my heart inside of your hand,
(You’re gonna wish you, never had met me),
And you played it to the beat,
(Tears are gonna fall, rolling in the deep).

I’m not sure why those lyrics resonate so strongly with me. I just can’t get the song out of my head. It really sticks with me. I think it somewhat describes my last relationship. One that ended several years ago, but was the most prominent relationship as an adult so far.  It’s amazing how things that affect us so much, last so long even though we think we’ve dealt with every aspect of it’s demise.

And then I’m reminded of the love of a mother. Happy post-Mother’s Day to all of you who are mother’s in whatever way. I consider myself a mom with a cat and dog. I still feel that I parent these guys to ensure I have a home to come back to. I think my love for them also exemplifies the reason why they don’t tear things up. Ha ha!

Well, that’s it for this post. It’s taken me almost a month to get this one up, and before you know it, it will be June. Where is the time going?

Four and a half years have passed since my cancer diagnosis. I can’t believe it.

I’ve been thinking a lot about developing my consulting business so that I can actually get something going and help others on a more professional level.

Do I have to have my degree before I begin? What do you think?

Over the coming months, I’m really going to be looking for your comments on my book. I would like to see what the interest is in my work.

And, maybe you can help me develop a title! I have 100 pages written so far, and wrote a few more last night, after a few year hiatus!

Any recommendations on how to promote through my blog, make my blog more user friendly, or any kind of constructive criticism is welcomed! How else am I going to learn, other than possibly spending too much money on a developer!

So, this leads me to the question(s) for this week:

  • Do you know where you are going in life?
  • Do you know what your passions and dreams are?
  • Do you know who you are?

These are all questions that I will help you begin to address through a number of creative ways (vision boards, written diary, mind maps, nature walks) when you schedule a 1 hour introductory session with me.

Enjoy your sunny day and let’s chat soon.

I welcome your comments!

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